beege's Cancer Blog
January 18, 2010
I am seriously getting irritated with this damn leg of mine! First I was diagnosed with nueropathy back in Sept~~~which is getting worse…..I now have the burning feet! UGH! Strange though…I only have it on my left side???
NOW I have been diagnosed with ltmphedema and am in physical therapy to learn how to manage it and to get the swelling down with these sexy wraps…..I feel like I am sleeping with a damn log! The bandaging is HUGE! OH OH OH and I almost forget~~~ I have what they belive to be venous insufficiency due to some vein damage in my pelvis.I just had an extensive 3.5 hour MRI to look for abnormalities and all was clear minus osteoarthritis in my hip and extensive radiation damage in my pelvis.
I guess I am just being pissy and wish that this would all go away…....far far away!
It is interupting my sleep and I now have to ATTEMPT to get some rest on my couch as not to disturb my DH wih my tossing and turning. My pain is worse at night for some reason.
I have been told by my entire team of DR’s and the emergency room that this is ALL due to rad damage and chemo side affects and they would be life long but managable.
I freaked when i saw my leg swelling as it is a sign of recurrance but they assure me it would have presented itself on a contrasted mri….not to worry and said it was all the above…..
He did say i was doing VERY well and that I am coming up on my 2 year mark w/o cancer and that is GREAT for me…....
September 19, 2009
Has anyone heard from Cherl???
She hasn’t posted in a week or so and I am worried about her. Her not posting is not like her…....
Just curious and worried.
Last we heard was that she had gone fishin’! Hope she is catching everything and more of what ever it was that she was fishin’ for!
Posted on Something’s not right…..she wouldn’t leave us haanging and to worry about her like this…She post updates on herself regularly.
Cherl—-if you read this let us know what is going on baby! Miss ya!
Posted on Your right Billie Jean. . . it’s been two weeks since her last post. I watch for her daily. . . and am missing her too.
Thoughts and prayers to Cheryl, hoping she can give us an update soon; and to the rest of you too, hanging in there with you,
-Kathy
Posted on billie jean..
fyi…last weekend, i received a follow-up blog reponse from cheryl
dennismcgn
Posted on I’m here I’m here! Wish you guys wouldn’t worry about me. Mostly I’m too tired to blog and it’s quite an effort with my chemo brain. Just so you guys know either my son or girlfriend will post when I make my transition home.
I have had no energy to speak of. I had a little energy spurt for about three days a few weeks ago and then crashed. And now I’m getting migraines, yesterday and today which is not like me. Also feel like my jaw is tightening. So I have been sleeping round the clock pretty much incapacitated. Not eating or drinking fluids until Sean or Nelson get home to take care of me. I’m going to oncology tomorrow for support group but my priority will be to see my doctor. I want to get a scan. It’s been 4 months since my last one and I fear the cancer is in my brain. I just need to know for sure. So I will get that scheduled (if insurance will pay).
Hugs to you all, Cheryl
Posted on Just saw yoru blog first time. I am from Spfld area too. My twin lived there most of her lide until she died.. Annette Zahn, her in law is retired doctor Zahn there. You knwo them?
All my family in MO that area. Just saying Hey to Missourian! :)
BARB R
No—- I am not familiar with Dr. Zahn. I am sorry to hear of the passing of your twin sister. I don’t know any Zahn’s but Springfiels is rather a large town.
Thanks for your support - 
Billie Jean,
I am so sorry that you are having so many problems with your leg. I hope that it soon will be better. I do want to wish you congrats on your 2 yr cancer free mark. That is wonderful. I will continue to keep you in my prayers.
Nancy
Sorry you are going thru all this and having to sleep on the couch so not to disturbe your DH. Frustrating. But even more frustrating is the pain you are going thru. Is there any pain meds that can help? And as for those sexy “wraps”, can we bedazzle them?
Dear Billie Jean,
I can’t imagine what it’s like for you. My mom used to suffer from neuropathy due to diabetes. It was miserable. As a massage practitioner, I’ve worked with people who had the kind of lymph swelling you describe. It’s such a painful thing.
Sending hugs,
Theresa
Billie Jean, I am sorry to hear you have lymphedema. I hear it is very painful. It sounds like you caught it early, and hopefully with treatment you can manage it. I think you have a job where you stand all day, that probably makes it worse. Pamper your leg as much as you can. Don’t cut it, get insect bites or sunburn. It will aggravate it. Thank God it isn’t a recurrence. I guess we just have to learn to live with some “issues” after cancer.
Congratulations on your two-year cancer-free anniversary! Go do something fun!
The radiation left me with an insufficiency fracture to my sacrum. I had quite a scare a few months ago. I had a CT scan that showed an abnormal lesion in my right sacral area. Then I had a bone scan, and an MRI, and they finally determined it was a microfracture to my sacrum. I know exactly when I hurt it, during exercise. It was never really that painful, and all pain went away in about a month. The waiting and worrying about this tests is enough to make you crazy!
Take care, Amy
Hey Billie Jean,
I’m so sorry to hear about your side effects, but thrilled to hear about your two year anniversary.
Hopefully your neuropathy will subside with time.
As for the lymphedema, listen to your body and take good care of yourself.
Some of these things we have to deal with in our fight for life sucks, but we’re here, and we’re fighting them.
And that’s a heck of a lot better than the alternative.
I wish you strength and continued healing.
Jill
Hi Billie Jean,
I noticed you blog while reading another cervical cancer blog. Well let me tell you about the lymphema. Wouldn’t it been nice if one of your many doctors had informed you of the possibility of this occuring? I have right leg lympedema and wear a 30-40 Jobs compression stocking. Not one of my, lets see 10 doctors, even remotely suggested that this could happen and that it could be prevented, or at least minimized the damage, if proper pro-active measures were taken at the first signs of swelling. Matter of fact, none of the doctors even had a clue of what was happening and thought I had a meniscus tear of some sorts..,..its been since June 2006. I just deal with it. The lymph drainage thing didn’t work for me, but a trampoline does. A eastern medicine doctor told me the trampoline, and it works. Jumping on it (its small) forces the lymph fluid back up…. God Bless you and take care
Sharon